Cover image for Waiting for cancer to come : women's experiences with genetic testing and medical decision making for breast and ovarian cancer
Title:
Waiting for cancer to come : women's experiences with genetic testing and medical decision making for breast and ovarian cancer
Author:
Hesse-Biber, Sharlene Nagy, author.
Publication Information:
Ann Arbor : The University of Michigan Press, [2014]
Physical Description:
x, 216 pages ; 24 cm
Language:
English
Contents:
The genetic testing industry : capitalizing on fear, selling empowerment -- Ready for the test -- You're BRCA positive -- Waiting and watching -- The surgical fix -- Finding a new normal -- Toward empowerment.
ISBN:
9780472072194

9780472052196
Format :
Book

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Summary

Summary

Waiting for Cancer to Come tells the stories of women who are struggling with their high risk for cancer. Based on interviews and surveys of dozens of women, this book pieces together the diverse yet interlocking experiences of women who have tested positive for the BRCA 1/2 gene mutations, which indicate a higher risk of developing breast and ovarian cancer. Sharlene Hesse-Biber brings these narratives to light and follows women's journeys from deciding to get screened for BRCA, to learning the test has come back positive, to dealing with their risk. Many women already know the challenges of a family history riddled with cancer and now find themselves with the devastating knowledge of their own genetic risk. Using the voices of the women themselves to describe the under-explored BRCA experience, Waiting for Cancer to Come looks at the varied emotional, social, economic, and psychological factors at play in women's decisions about testing and cancer prevention.


Author Notes

Sharlene Hesse-Biber is Professor of Sociology and the Director of Women's Studies & Gender Studies Program at Boston College.


Reviews 1

Choice Review

Sociologist Hesse-Biber (Boston College) is well regarded for her work on research methodologies; she edited the Handbook of Feminist Research (2nd ed., 2012; 1st ed., CH, Apr'07, 44-4753) and contributed to numerous books including works on grounded theory and mixed-methods research. Her most recent book, Waiting for Cancer to Come, presents qualitative analysis of over 60 in-depth interviews with women who have tested positive for genetic mutations that increase their risk of developing breast or ovarian cancer, and effectively demonstrates feminist, mixed-methods research. The book begins with a content analysis of the commercial marketing approaches to genetic testing and the stereotypes of femininity that such marketing employs. Throughout the rest of the book, Hesse-Biber prioritizes the voices and experiences of women as they calculate their cancer risk, make decisions to undergo major surgery or opt for increased surveillance, and negotiate the new normal of their lives after a positive test. The book concludes with an elegant and enlightening personal accounting of the research methods and would be a useful resource in any course on qualitative research methods. Summing Up: Recommended. All health sciences collections. --Aleta M Baldwin, Indiana University, Bloomington