Cover image for I care : a handbook for care partners of people with dementia
Title:
I care : a handbook for care partners of people with dementia
Author:
Brush, Jennifer A., author.
Personal Author:
Publication Information:
Bloomington, IN : Balboa Press, a division of Hay House, 2014

©2014
Physical Description:
[xiii], 161 pages : charts, 21 cm
Summary:
"I Care is a comprehensive book that offers a greater understanding of how to manage the difficulties of Alzheimer's disease and related dementias..." -- front cover

"I Care covers: Minimizing the care partner's fears, frustrations, and stress ; Managing changes in communication, memory loss and behavior using best care techniques ; Making the home safe and supportive ; Understanding changes in brain function ; Addressing financial and legal issues ; and much more." -- back cover.
Language:
English
Contents:
Contents: Thank you -- Preface -- Introduction -- Chapter 1: Controlling yourself not the circumstances -- Chapter 2: Describing the brain with dementia -- Chapter 3: Putting your ducks in a row -- Chapter 4: Staying engaged -- Chapter 5: Creating meaningful time, not just passing the time -- Chapter 6: Making the home safe and supportive -- Chapter 7: Taking care of yourself -- Appendix -- Health care summary for emergency personnel -- Conversations to have with your physician -- Long-term care residence checklist -- Long-term care insurance company questions -- Blank behavioral log -- Quick reading check -- Home environment safety checklist -- About the authors.
ISBN:
9781452590738
Format :
Book

Available:*

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Summary

Summary

This book will both inspire and educate care partners of people with Alzheimer's diesease and related dementias to make the most of each day. Care partners with see their loved ones as a whole person with strengths and abilities, which will promote greatre independence and self-sufficiency for the person with dementia. I Care covers minimizing the care partner's fears, frustrations, and stress; managing changes in communication, memory loss, and behavior using best care techniques; making the home safe and supportive; understanding changes in brain function; addressing financial and legal issues; and much more.


Author Notes

Jennifer A. Brush, MA, CCC/SLP is a nationally recognized researcher known for her innovative work in the areas of memory and environmental interventions for people with dementia. Jennifer's interactive approach to teaching helps care partners understand the unique needs of people with dementia. Learn more at www.BrushDevelopment.com.


Excerpts

Excerpts

Creating Meaningful Time, not just Passing the Time When you encourage someone, you build hope. When you build hope, you support dreams and celebrate achievements. People with dementia still have hopes and dreams and achievements. What can you celebrate today? Paul was a very bright lawyer and a man who adored his family. As he experienced the progression of his dementia, however, he became very lonely and longed for more companionship than his family could provide. However, as is the case with most families, his wife and daughter were convinced that Paul would resist having a companion. So Paul and his wife, met Abby and me, at a local coffee shop. Abby was a young girl aspiring to be an actress who excelled in all areas, but needed more experience singing in front of others. Having just graduated from college, Abby was at the crossroads of "what's next in life." Paul loved opera and, while he confessed he could not sing, loved to listen to music. Fortunately, he also couldn't help but give advice to others. Our purpose in arranging this meeting was to manage the conversation in such a way that Paul would be comfortable spending time with Abby. After Paul and Abby seemed comfortable with each other, the plan was to suggest they get together, because it seemed like they would enjoy each other's company. However, before I had the chance to say anything, Paul said to Abby, "Hey, why don't we do this? A few times a week, let's get together, and you can sing in front of me, and then we can talk about what you should do in life." His wife and I were in shock! We approached the situation thinking we had all the control, but in actuality, Paul, the man with dementia, took control. The outcome was better than we hoped for and it was all his idea! Establish Goals Conventional wisdom says that people with dementia don't have goals. This is a myth. People with dementia do have goals. Have you ever noticed that a person with dementia always has a place to go or someone to meet? Despite whether these places or people exist anymore is irrelevant. Their desire emphasizes the point he or she does have goals. One way to prove this point is to ask "What would you like to accomplish today?" Take a minute, put this book down and ask your loved one this question. Welcome back! Now that you know that the person has goals, we can discuss how to set and accomplish these goals. The first step is to distinguish between realistic and unrealistic goals. Here is where conflict may arise. Typically, when asked, the person with dementia will want to do something that's not realistic such as, "I want to go to work." The care partner often tries to bring the person from his or her "reality" to actual reality, which usually results in conflict. The person with dementia is left to do one of two things: move on by him or herself or argue with the care partner. If the care partner responds in an argumentative manner, it only serves to escalate the situation. Remember, as the care partner, you are the one who can change, not the person with dementia. Not because he or she doesn't want to, but because you are the one who has the power, the understanding and the ability to recognize that there are two different "right" answers. In addition, when the frontal lobe of the brain is damaged (see Chapter 2 to learn more about the parts of the brain), a person's ability to reason or make appropriate judgments can be impaired. This means that when a person argues with a person with dementia, the person without the disease has an advantage and should not use it to challenge the person with dementia. Lastly, it is important that the care partner recognize that some of the goals are unrealistic, but some of them will just look different once they are accomplished. In the latter case, the care partner needs to adjust his/her expectations and be prepared to "roll with the punches," so to speak. As you become comfortable, write down the goals of the person with dementia. It is good to refer back to this list and see if he or she wants to change these goals at some point. You can write your goals as well and look at them together. Give Up "Control" As care partners, we become experts in trying to control every situation. We hope to minimize the unexpected, make life better for the person with dementia and, in the process, make our job easier. Actually though, trying to maintain control constantly can create a great deal of resistance and make everyone's life a little bit harder. Routine and structure are both very valuable, but these don't equate to control. By asking the person with dementia their opinion, you are giving him or her control, something we are all keenly aware of when someone takes it away. While a person with dementia needs help, and may not be able to function as he or she did before being diagnosed, the care partner does not need us to take over his or her life. Unfortunately, this is often what we do without realizing it. Points to remember: * While it may not seem to you that they can answer questions correctly, don't look for a right answer. * Ask questions that don't have a "yes/no" answer or the person will always say "no" because he or she might be feeling insecure or unsure. Instead, start by asking questions that give options, such as, "Should we do the laundry or dust the furniture first?" * Remember that the questions aren't just about the other person, but about both of you. Meaning, when it's time to eat, both of you should eat together, and when it is time for exercise, it is time for both of you to exercise. Excerpted from I Care: A Handbook for Care Partners of People with Dementia by Kerry Mills, Jennifer A. Brush All rights reserved by the original copyright owners. Excerpts are provided for display purposes only and may not be reproduced, reprinted or distributed without the written permission of the publisher.

Table of Contents

Thank Youp. ix
Prefacep. xi
Introductionp. xiii
Chapter 1 Controlling Yourself, Not the Circumstancesp. 1
Self-disciplinep. 7
Attitudep. 9
Groundworkp. 12
Possibilitiesp. 15
Chapter 2 Describing the Brain with Dementiap. 18
Defining Dementiap. 20
Alzheimer's Diseasep. 21
Chapter 3 Putting Your Ducks in a Rowp. 39
Legal Documentsp. 41
Your Direct Care Teamp. 52
Preparing for a Movep. 59
Chapter 4 Staying Engagedp. 63
Communicating with Someone with Dementiap. 66
Encouraging Socializationp. 68
Chapter 5 Creating Meaningful Time, Not Just Passing the Timep. 83
Give Up Controlp. 86
Small Changes, Big Successesp. 88
Dear Friendsp. 94
Meaningful Activitiesp. 96
Chapter 6 Making the Home Safe and Supportivep. 105
Organization Establishes Calmnessp. 107
Memory Centers Produce Self-Dependencep. 107
Routines Provide Predictabilityp. 109
Home Modifications Compensate for Deficitsp. 111
Chapter 7 Taking Care of Yourselfp. 121
Overcoming Guiltp. 122
Make Time for Yourselfp. 129
Where to Look for Helpp. 132
Appendix
Health Care Summary for Emergency Personnelp. 137
Conversations to Have With Your Physicianp. 139
Long-Term Care Residence Checklistp. 141
Long-Term Care Insurance Company Questionsp. 146
Blank Behavioral Logp. 148
Quick Reading Checkp. 150
Home Environment Safety Checklistp. 152
Interview Questions for a Potential Companionp. 156
About the Authorsp. 160

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