Cover image for Women's experiences with HIV/AIDS : mending fractured selves
Title:
Women's experiences with HIV/AIDS : mending fractured selves
Author:
Ciambrone, Desirʹee.
Personal Author:
Publication Information:
New York : Haworth Press, [2003]

©2003
Physical Description:
xi, 213 pages ; 23 cm
Language:
English
ISBN:
9780789017574

9780789017581
Format :
Book

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Call Number
Material Type
Home Location
Status
Central Library RC606.6 .C535 2003 Adult Non-Fiction Central Closed Stacks
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Summary

Summary

Meet the women behind the statistics!

Women's Experiences with HIV/AIDS: Mending Fractured Selves examines the impact of HIV/AIDS on women, the fastest-growing subgroup of the HIV-infected population of the United States. Based on interviews with HIV-infected women, the book gives voice to their experiences. This powerful text offers a firsthand view of what it is like to live day-to-day as a woman with the added burden of HIV/AIDS.

Women's Experiences with HIV/AIDS is a powerful and compelling look at the day-to-day struggles of 37 women infected with HIV. Their stories detail their ongoing efforts--with varying degrees of success--to come to grips with the disease as they try to rebuild their lives. Through qualitative analysis, the book demonstrates the importance of relational resources, such as AIDS activism, support groups, and social support. It also addresses potential problems for women associated with caregiving and presents ethnographic research findings on the complex factors that affect women with HIV (socioeconomic status, sexual preference, lifestyle differences).

Women's Experiences with HIV/AIDS also addresses research topics such as: how HIV infection affects a woman's sense of self how women repair disruption and restore identities the limits to women's coping strategies and whether those strategies still work if women become functionally impaired or develop AIDS how women's structural and social environments facilitate or impede repair the role of women's informal networks in biological disruption and repair A rare look at the experience of women infected with HIV (most studies focus on male samples), Women's Experiences with HIV/AIDS is an invaluable academic resource as a course supplement in the fields of medical sociology, women's studies, public health, and community health, and is an enlightening read for everyone interested in HIV/AIDS research.


Reviews 1

Choice Review

Ciambrone examines the impact of HIV/AIDS on women, the fastest-growing subgroup of the HIV-infected population of the US. Based on interviews with 37 HIV-infected women, the book gives voice to their experiences. These women speak candidly about the impact of illness on their lives in interviews that highlight key issues pertinent to living with the infection, including the everyday impact of an HIV diagnosis and the effect of the disease on women's social and familial roles. Their stories detail their ongoing efforts (with varying degrees of success) to come to grips with the disease as they try to rebuild their lives. Ciambrone chronicles the lives of these women in her study so the reader has the sense of being a silent observer of their lives. She emphasizes the importance of relational resources, such as AIDS activism, support groups, and social support. The book also addresses potential problems for women associated with caregiving and presents ethnographic research findings (socioeconomic status, sexual preference, lifestyle differences) on the complex issues that affect women with HIV. A significant contribution to our knowledge of women and HIV, and to qualitative research. ^BSumming Up: Highly recommended. All levels. J. M. Howe Veterans Administration


Table of Contents

Acknowledgmentsp. xi
Chapter 1. Introductionp. 1
Disruption and Legitimation: Hillaryp. 1
Problematic Repair Strategies: Denisep. 4
Disruption and Nonrepair: Stephaniep. 6
HIV/AIDS As a Gender Issuep. 9
Analytic Framework: Biographical Disruption and HIV/AIDSp. 12
Sample and Methodologyp. 14
Overview of This Bookp. 18
Chapter 2. "Feeling Like Nothing": Receiving an HIV Diagnosis and Initial Disruptionp. 21
Biographical Disruption Among Women with HIV/AIDSp. 21
Hopelessnessp. 22
Disbeliefp. 26
Social Withdrawalp. 31
Placing Blamep. 33
Putting Oneself Lastp. 36
Assigning Meaning and Sense of Selfp. 38
Women and Disruptionp. 40
Chapter 3. Living with HIV Infection: The Impact of Illness on Everyday Lifep. 43
Gender and the Psychosocial Impact of HIV Infectionp. 43
Adaptive Tasks for Women with HIV/AIDSp. 44
The Perceived Significance of Genderp. 57
Women's Unique Experiences and Needsp. 61
Chapter 4. Toward Legitimation: Coping with HIV/AIDSp. 65
Coping with HIV/AIDS: A Brief Review of the Literaturep. 65
Women's Ways of Coping: Repairing Disrupted Biographiesp. 68
Going Public and Becoming an Activistp. 68
Support Groupsp. 74
Spiritualityp. 79
Establishing Positive Lifestylesp. 86
Avoidancep. 89
Legitimation and Sense of Selfp. 92
Chapter 5. Social Support: The Role of Informal Networks in Women's Livesp. 95
Social Support and HIV/AIDSp. 96
Familial Support Networksp. 99
Problematic Supportp. 113
Keeping the Secret: Untapped Support Networks and Self-Protectionp. 119
Social Support and Illness Progression: Speculating on the Likelihood of Future Supportp. 121
Chapter 6. Women As Carers: The Dual Challenge of Caregiving and Living with HIV Infectionp. 127
Motheringp. 128
Planning for the Future: Child Care and Guardianshipp. 135
Caring for Adults with HIV/AIDSp. 138
The Consequences of Caringp. 145
Chapter 7. Multiple Assaults on Self: The Relative Impact of HIV/AIDS on Women's Livesp. 149
"I'm Used to Being Ate Up Anyway"p. 150
"Nothing Compares to HIV"p. 161
The Relative Impact of Assaultsp. 165
Chapter 8. Disruption and Repair: Lessons from Women's Illness Experiencesp. 171
The Strengths and Weaknesses of Women's Copingp. 171
Formal Care and Women with HIV Infectionp. 177
Empowerment and Social Changep. 179
Experiencing Illness: Extending HIV-Positive Women's Experiences to Other Populationsp. 181
Appendix Sample Demographic Summaryp. 185
Referencesp. 187
Indexp. 205

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