Cover image for When Parkinson's strikes early : voices, choices, resources, and treatment
When Parkinson's strikes early : voices, choices, resources, and treatment
Blake-Krebs, Barbara.
Publication Information:
Alameda, CA : Hunter House, [2001]

Physical Description:
xiv, 270 pages : illustrations ; 22 cm
Format :


Call Number
Material Type
Home Location
Item Holds
RC382 .W48 2001 Adult Non-Fiction Non-Fiction Area

On Order



Parkinson's disease is often associated with the elderly, but half a million sufferers are in their early fifties or younger. This disorder carries both a physical and social stigma, with neurological degeneration made worse by the refusal of many to seek help. When Parkinson's Strikes Early grew out of an Internet discussion group in 1996, and was further inspired by actor Michael J. Fox's revelation that he has Parkinson's disease. This book covers symptoms, side effects of medication, support networks, and surgery options, and explores the physical, emotional, and social struggles that face young people with Parkinson's. Resources, advocacy ideas, and an index are also included.

Reviews 1

Booklist Review

Parkinson's struck Blake-Krebs and Herman in their mid-40s, and it hits some in their 30s or even earlier. Young people who have this disease usually associated with the elderly face several major problems, including living with the disease for many years, continually adjusting drugs and dosages, and finding assisted-living facilities. Those come in addition to difficulties with romance, marriage, and family life; the deeply personal chapter on the latter difficulties is one of the best in the book. Blake-Krebs and Herman also present valuable material on Parkinson's diagnosis, treatment (there is no cure), research, funding, and publicity, and in the main text and appendixes they provide access to support and other resource groups. Smoothly blending excerpts from the e-mailings of members of the Parkinson's Information Exchange Network (PIEN) and their own writing, Blake-Krebs and Herman assemble a real aid to younger Parkinson's sufferers. --William Beatty

Table of Contents

Important Notep. viii
Forewordp. ix
Acknowledgementsp. xii
Introductionp. 1
1 Welcome to the Journeyp. 6
2 From Uninvited Guest to Master of the House: Symptoms and Side Effects as Parkinson's Disease Progressesp. 29
3 Living with Parkinson's Disease I: Quality of Lifep. 46
4 Living with Parkinson's Disease II: Romance, Marriage, and Familyp. 74
5 Invisible People: How the Public Perceives Parkinson's Diseasep. 98
6 "Invisible No More!": Empowerment Through Communityp. 127
7 When Drugs Fail: Surgeries for Parkinson's Diseasep. 159
8 Routes to a Cure, Hopes for the Futurep. 186
About Our Contributorsp. 206
Appendix 1 Ideas for Advocatesp. 215
Appendix 2 A Selective Resource Guide to Parkinson's Disease Informationp. 219
Endnotesp. 248
Referencesp. 256
Indexp. 263