Cover image for The parent's guide to children's congenital heart defects : what they are, how to treat them, how to cope with them
The parent's guide to children's congenital heart defects : what they are, how to treat them, how to cope with them
Kramer, Gerri Freid.
Personal Author:
First edition.
Publication Information:
New York: Three Rivers Press, [2001]

Physical Description:
xix, 265 pages : illustrations ; 24 cm
Added Author:
Format :


Call Number
Material Type
Home Location
Item Holds
RJ426.C64 K73 2001 Adult Non-Fiction Non-Fiction Area
RJ426.C64 K73 2001 Adult Non-Fiction Central Closed Stacks

On Order



"The Parent's Guide to Children's Congenital Heart Defects" (CHD) covers everything a parent facing his or her child's CHD will want to know and then some: the Why's, What's, and How's of a range of disorders, symptoms, and treatments associated with CHD -- from the womb and into the world, in the hospital, home, school, playground, all the way to adulthood. No more will parents have to wade through medical textbooks to find answers to their questions, and questions they didn't know to ask. The authors, each with a child who survived CHD, worked in direct collaboration with the top experts in the field to translate the most up-to-date knowledge about CHD into plain, empathetic English. They add a chorus of other parents' CHD stories for moral support and homespun advice. Chapters include: Diagnosis: symptoms, tests, causes, and developmentCoping: Sharing the news, informing your child, finding support, and living with CHDDay to Day: Eating and nutrition, childhood illnesses, medications,and other everyday concernsSurgery: blood donations, heart valves, the OR, catheterization, and surgical proceduresThe Hospital: overview, the ICU, and recoveryLife After Surgery: activity, scars, complications, follow-up, having more childrenGrowing Up: approaching adulthood, sex and reproduction, psycho-social aspects, finding information, mutual support, and communityResources: extensive list of online and bricks and mortar sources of information, help, and supportBibliographyand a heartfelt foreword by Sylvester Stallone and Jennifer Flavin-Stallone.

Author Notes

Gerri Freid Kramer is a senior writer/producer for DWJ Television, a broadcast public relations company. She lives in Tampa, Florida.

(Bowker Author Biography)

Reviews 2

Booklist Review

Kramer and Maurer met in college, went their separate ways, and met again years later when both had children born with congenital heart disease (CHD). The bond they formed and the information they gleaned led to their coauthorship of this accessible and valuable resource for parents caring for children with CHD. The book starts with the diagnosis of the condition--including a broad range of defects--and goes through the process of hospital visits and surgery. The book is arranged in a question-and-answer format, with pediatric cardiologists and related medical experts providing medical information. The hard medical facts are supplemented by commentary from parents on a range of issues, from helping children cope with the fear of having blood drawn and undergoing heart echocardiograms to dealing with developmental problems that may result from CHD. The book also includes suggestions for helping adult children plan their own families given the need for continued vigilance about CHD. Plenty of charts and graphics help parents understand this most common of birth defects. --Vanessa Bush

Library Journal Review

This is a wonderfully reassuring book for parents whose child has been recently diagnosed with a congenital heart defect (CHD). CHDs vary in complexity, and the authors, both parents of CHD children, note that treatment will be as individualized as each child's defect(s). But with the assistance of more than 30 medical experts, they clearly outline the most common scenarios parents are likely to face. The authors knowledgeably discuss both the medical and the emotional issues to be addressed, from diagnosis through surgery (if needed) to recovery on to adulthood. An illustrated overview of 16 of the most common defects covers name, definition and anatomy, symptoms, prognosis, treatment and surgical options, surgical timing, medications and postoperative medical care, possible restrictions, long-term concerns, and medical advances on the horizon. Other chapters walk parents through daily coping, what to expect during hospital stays, and life after surgery. Salted throughout each chapter are frank comments and helpful suggestions from parents who have "been there, done that." This title nicely updates the best-known book, Catherine Neill's The Heart of a Child: What Families Need To Know About Heart Disorders in Children (LJ 2/1/93). Resources, a glossary, and a reading list are appended. Recommended for children's health collections. (Index not seen.) Anne C. Tomlin, Auburn Memorial Hosp. Lib., NY (c) Copyright 2010. Library Journals LLC, a wholly owned subsidiary of Media Source, Inc. No redistribution permitted.