Cover image for Children with fragile X syndrome : a parents' guide
Title:
Children with fragile X syndrome : a parents' guide
Author:
Weber, Jayne Dixon.
Publication Information:
Bethesda, MD : Woodbine House, 2000.
Physical Description:
x, 460 pages : illustrations ; 22 cm.
Language:
English
Added Author:
ISBN:
9780933149779
Format :
Book

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Library
Call Number
Material Type
Home Location
Status
Audubon Library RJ506.F73 C48 2000 Adult Non-Fiction Open Shelf
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Summary

Summary

Fragile X syndrome is one of the most common genetic causes of developmental delays, learning disabilities and particular physical characteristics. This guide looks at the issues from diagnosis to legal rights, covering emotional and practical concerns, advocacy and education.


Reviews 1

Library Journal Review

Woodbine House has done it again! They have created another thorough yet easy-to-understand guide for parents of special-needs children. This one is especially important because of the absence of other good parenting texts on Fragile X Syndrome, which is one of the most common genetic causes of mental retardation. Recent evidence suggests that it may be even more prevalent than Down Syndrome. The book follows the publisher's well-established format, covering topics such as diagnosis, medical concerns, family life, education, legal issues, daily care, and advocacy. Each chapter closes with statements from other parents. As usual, the resource list in the back is well worth the cost of the book. Of special note is the chapter on education, which offers one of the most extensive coverages of Individual Education Plans (IEPs) and other educational hurdles offered by any book in recent years. Essential for all consumer health collections.DKellyJo Houtz Griffin, Eatonville,WA (c) Copyright 2010. Library Journals LLC, a wholly owned subsidiary of Media Source, Inc. No redistribution permitted.


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