Cover image for Parkinson's disease : a self-help guide
Title:
Parkinson's disease : a self-help guide
Author:
Jahanshahi, Marjan.
Publication Information:
New York : Demos, 2000.
Physical Description:
xviii, 392 pages ; 23 cm
General Note:
Includes index.
Language:
English
ISBN:
9781888799385
Format :
Book

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Summary

Summary

If you or a loved one has been diagnosed with Parkinson's disease, this book was written for you. Parkinson's disease is one of the most common neurologic illnesses, one that often has devastating effects on patients and their families. Because the disease is progressive and disabling, the diagnosis is likely to be traumatic.

This compassionate, informative, and essentially practical book will help fill the gap too often left in doctor-patient communication. Patients are often given only minimal information about their condition and its treatment, with the family left to adapt as best they can to the long-term demands of the illness. This practical, detailed guide provides full up-to-date information about:

The symptoms of the disease and its possible causes. The process of diagnosis and the likely course of the illness. Various types of treatment, including medication and surgery. The implications of the disease for work, daily activities, finance, and personal and social relationships. What both patients and families can do to minimize and cope with the stresses they will have to face. Support groups and other organizations that can offer help.

Although Parkinson's disease inevitably has a major effect on the well-being and social life of patient and family, the valuable advice offered in this book will lighten the load and ease the challenge of coping.

North American rights only.

"


Author Notes

Dr. Marjan Jahanshahi works at the Institute of Neurology and the National Hospital for Neurology and Surgery
The late Professor David Marsden was Dean of the Institute of Neurology and an internationally respected authority on movement disorders, with many hundreds of published papers to his credit


Table of Contents

Marjan Jahanshahi and Brigid MacCarthyRichard BrownBrigid MacCarthyMarjan Jahanshahi and Brigid MacCarthyRichard BrownBrigid MacCarthy and Marjan JahanshahiLanny E. Perkins and Sara D. Perkins
Acknowledgmentsp. xi
Prefacep. xiii
Part I Parkinson's Disease: The Medical Facts
1 What Is Parkinson's Diseasep. 3
How common is it and who gets it?p. 3
The symptomsp. 5
The causesp. 19
Key factsp. 31
2 Diagnosis and Prognosisp. 35
First symptoms: the prediagnostic phasep. 36
First contacts with the medical professionp. 37
The neurologic examination and the differential diagnosis testsp. 45
Progression and prognosisp. 54
Key factsp. 57
3 The Medical and Surgical Treatment of the Symptoms of Parkinson's Diseasep. 61
Medicationp. 62
Surgeryp. 87
Key factsp. 94
Part II Living with Parkinson's Disease
4 Chronic Illnessp. 99
Stress, appraisal, social support, and copingp. 100
The objective burden and the subjective burdenp. 105
Acute and chronic illnessp. 107
The "phases" of chronic illnessp. 109
Impairment, disability, and handicapp. 115
Quality of lifep. 117
Key factsp. 118
5 From the Perspective of the Person with Parkinson's Diseasep. 123
Daily activities and self-carep. 124
Mobilityp. 127
Work and leisurep. 131
Financial independencep. 140
Relationshipsp. 141
Moodp. 150
Key factsp. 157
6 From the Family's Perspectivep. 161
Before diagnosisp. 162
The diagnosisp. 164
The phase of mild to moderate disabilityp. 166
The phase of severe disabilityp. 172
Other people as caregiversp. 178
People without a caregiverp. 181
Key factsp. 182
7 Parkinson's Disease and Dementiap. 185
The nature of dementia in Parkinson's diseasep. 186
The special needs of the Parkinson's disease patient with dementiap. 187
Key factsp. 198
8 Young-Onset Parkinson's Diseasep. 201
The nature of young-onset Parkinson's diseasep. 201
The special needs of people with young-onset Parkinson's disease and their familiesp. 202
Key factsp. 224
Part III Coping with Parkinson's Disease
9 Getting Help from Othersp. 229
Adjunctive therapy: improving the symptomsp. 230
Adjunctive therapy: preventing or reducing disability and handicapp. 237
Social Security rights and benefitsp. 249
Services for the middle and later phasesp. 249
Vacationsp. 251
Alternative medicinep. 252
Key factsp. 253
10 Self-Help Strategies for the Person with Parkinson's Disease: Minimizing Disability and Preventing Handicapp. 255
Scheduling your activitiesp. 255
Self-carep. 257
Mobilityp. 259
Work and leisurep. 264
Financial independencep. 271
Relationshipsp. 272
Key factsp. 278
11 Self-Help Strategies for the Person with the Illness: Maintaining Emotional Well-Beingp. 281
Accept that you have Parkinson's diseasep. 281
Information permits choicep. 283
Avoid negative thinkingp. 284
Learn to deal with your emotionsp. 287
Maintain your self-esteemp. 291
Communication opens doorsp. 293
Positive action can bring reliefp. 294
Be willing to adjust continuallyp. 296
Key factsp. 297
12 Self-Help Strategies for Familiesp. 301
Strategies for coping in the mild to moderate phasep. 302
Strategies for coping in the severe phasep. 313
Campaign for services that will meet your needsp. 319
Key factsp. 320
13 Financial and Legal Issuesp. 325
Choosing professionalsp. 325
Employmentp. 327
Disability benefitsp. 332
Medicare, health insurance, and Medicaidp. 336
Wills, trusts, powers of attorney, and other estate mattersp. 349
Debt issuesp. 353
Taxes and tax planningp. 356
Part IV Epilogue
14 Past Perspective and Future Horizonsp. 361
The history of Parkinson's diseasep. 361
The way aheadp. 365
Appendix I Drug Finderp. 373
Appendix II Resourcesp. 377
Indexp. 383