Cover image for Young people and chronic illness : true stories, help, and hope
Young people and chronic illness : true stories, help, and hope
Huegel, Kelly, 1974-
Personal Author:
Publication Information:
Minneapolis, MN : Free Spirit Pub., [1998]

Physical Description:
viii, 199 pages : illustrations ; 23 cm
Presents true accounts of young people living with a chronic illness including how they have learned to cope and remain hopeful; also includes strategies for living with a chronic medical problem.
General Note:
Includes index.
Added Author:
Format :


Call Number
Material Type
Home Location
Item Holds
RJ388 .H84 1998 Adult Non-Fiction Non-Fiction Area

On Order



Written by a young woman with Crohn's disease, this book is a source of strength, inspiration, and sound advice for young people diagnosed with chronic illnesses. It helps them learn to cope, know they're not alone, and make the most of the wonderful opportunities that lie ahead. BandW photos.

Reviews 2

Booklist Review

Gr. 7^-12. This solid resource for teens coping with such chronic conditions as asthma and diabetes will also be useful for friends and family members. First-person accounts make up the first part of the book. Individuals ranging in age from 13 to 27 speak frankly about the fundamental ways their conditions have affected their lives, both physically and emotionally. Acceptance rather than bitterness seems the standard, with Huegel's strong voice reiterating, "There's a difference between knowing your limits and limiting yourself." Huegel, who also lives with a chronic condition, contributes practical suggestions and encouragement in follow-up sections, which cover such topics as communicating with friends and family, dealing with hospital stays and doctors, getting support, and planning for the future. Along the way, she identifies a number of useful book and Internet resources. --Stephanie Zvirin

School Library Journal Review

Gr 5 Up-In the first section of this book, Huegel introduces 10 young people, each of whom has a chronic illness. They explain how they were diagnosed; medical management; and how they deal with family, friends, and school. They share how they have fashioned a satisfying life for themselves despite the limitations their conditions might impose. The diseases discussed are hemophilia, diabetes, epilepsy, asthma, cancer, inflammatory bowel disease, juvenile rheumatoid arthritis, congenital heart defect, and lupus. Each chapter is accompanied by a small black-and-white photograph of its subject, followed by questions and answers about the disease and a list of resources including organizations, books, and Web sites. Part two discusses strategies for managing an illness; maintaining a relationship with a doctor; dealing with friends, family, and school; battling fear of hospitals; finding a support group; and planning for the future. The text, written in a conversational, sympathetic tone, is sprinkled with upbeat quotes. Advice is terse, well organized, and to the point, making it easy to remember, if difficult to carry out. There are many books that relate stories about the disease of the month, but Huegel's focus is on how these kids manage their own lives and how their experiences can help others cope with chronic illness. A good choice for any collection.-Martha Gordon, formerly at South Salem Library, NY (c) Copyright 2010. Library Journals LLC, a wholly owned subsidiary of Media Source, Inc. No redistribution permitted.